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Many people who have experienced viral meningitis feel that they are dismissed as having the ‘milder’ form of meningitis and that very little is understood about the recovery and after-effects. In response we have recently carried out a survey, with over 450 sufferers responding. The results show the real impact viral meningitis can have.
The results of our survey are helping us work towards raising the profile of the disease and inform health professionals, schools, employers, family and friends of the potential long term difficulties that sufferers can face.
Many different viruses can cause meningitis; the most common are a group called enteroviruses. These viruses live in the intestines and can commonly cause colds, sore throats, stomach upsets and diarrhoea. Only rarely do these viruses spread through the body to the meninges and cause meningitis.
There are many other viruses that can cause meningitis. The mumps virus was the most common known cause of viral meningitis in young children under five years of age before the introduction of the MMR (measles, mumps and rubella) vaccine.
The herpes simplex virus can also cause meningitis.
Although extremely rare, some viruses can cause recurring meningitis. This is known as Mollaret’s meningitis.
Because many different viruses can cause meningitis, the way in which the virus is spread will depend on its type. For example some viruses can be passed from person to person by coughing, sneezing and on unwashed hands.
Some types of viral meningitis can be prevented with vaccination. A routine vaccination (MMR) is available as part of the Childhood Immunisation Programme to prevent meningitis caused by mumps and measles. Practising good hygiene, such as washing hands after going to the toilet, will help to prevent the spread of viruses that are passed in faeces.
Antibiotics are not effective against viruses although, in some instances, antibiotics may be started on admission to hospital because the cause of meningitis is not known. For more information on this, visit our section on meningitis treatment.
Once viral meningitis has been diagnosed , there is no specific treatment for most cases, but patients need to be hydrated with fluids, given painkillers and allowed to rest in order to make as complete a recovery as possible. An exception to this, if herpes simplex is identified as the cause, treatment is possible with the antiviral drug Aciclovir.
The majority of people who get viral meningitis will make a good recovery with no long lasting after-effects. However a number of people will be left with a variety of serious problems which can result in permanent disability.
The after-effects of meningitis usually happen because of damage to various areas of the brain. While the after-effects of viral meningitis are not usually as severe as those of bacterial meningitis, they can still be long-lasting.
After-effects were experienced by 97% of respondents including:
Because viral meningitis is very rarely life-threatening, many sufferers feel that their illness is taken less seriously, with over half all respondents say that viral meningitis had caused them difficulty at work, or in education and many felt that family, friends and health professionals or employers did not understand the impact of viral meningitis.
Recovery from viral meningitis can be very slow, but is usually complete. Our survey showed that 90% of people were no longer experiencing after-effects six to 12 months after the illness, this rose to 93% one year after. However this still means that seven per cent were living with after-effects more than one year after the illness.
You can download our viral meningitis fact sheet. Or, if you have a question, you can speak to experienced staff on our freephone helpline, available 24-hours a day: 0808 80 10 388, or you can email us at email@example.com and we will come back to you as soon as we can.
We are here to support anyone affected by meningitis. We have a range of free support services, available for life.
Join our online forums to share your experiences with others affected by meningitis.
Thank you to everyone who has completed our survey, we had a fantastic response. The results are now being analysed.
Read stories from people affected by viral meningitis and see how the Meningitis Trust has helped.
Are you worried that you or someone may have meningitis?
You can now keep the Meningitis Trust signs and symptoms card on your iPhone. Life-saving information at your fingertips
Our helpline is available 24/7 to offer advice and answer your viral meningitis questions.