Behaviour & emotional problems

We know first-hand that meningitis has a huge impact on many aspects of people’s lives, leaving survivors with a wide range of after-effects, both visible and invisible.

Through our ongoing research we have identified the true impact of meningitis – on the individual, their family, friends, and even our society. This research highlights the need for support for life for sufferers, clearly showing that meningitis is not a disease which disappears as quickly as it strikes.

Learning and behavioural problems

Learning difficulties and behavioural problems can happen after meningitis, especially in babies and young children. Fortunately, many of these problems are short term and improve with time. However, long term problems, such as aggression and personality changes are often associated with brain damage (which can be an after-effect of meningitis).

When problems are more subtle, for example, irritability, difficulties concentrating, clumsiness, temper tantrums and sleep disorders, it is sometimes difficult to be sure that these problems are caused by meningitis. It is not always easy to get the right help and support.

When learning and behavioural difficulties following meningitis are long-term, you may need expert help and support. Many professionals including GPs, paediatricians, specialist teachers and psychologists, can help to reduce problems and make life easier. Patience and understanding from family, employers, schools and those working with sufferers is vital. We have a number of resources available to help people in contact, or working with, anyone affected by meningitis, so that they understand what the changes could be after meningitis.

Emotional after-effects

Following what can be an extremely traumatic experience, the emotional impact on individuals and families can be huge, even when there is a good physical recovery.

People tell us that their emotions can change from day-to-day and it is important to remember that everyone will respond to their illness differently.
Emotional difficulties will vary depending on age.
For example, young children can often experience nightmares, bed wetting, clinginess and temper tantrums.
Teenagers can go through a period of depression and find it difficult to express their emotions.
Children and adults may experience anxiety and depression, lack of self-esteem and confidence, and behavioural problems such as aggression and mood swings.
Patience and understanding is often the best way forward. Some people may need more support to get them through the bad times.

It's not unusual to feel isolated at this time and many people don't know who to turn to. Talking to someone who understands can be a great help and many people benefit from talking to our helpline staff. The helpline is staffed by specially trained nurses and there is someone ready to listen at any time of day or night. Call our nurses for free on 0808 80 10 388.

Memory problems

Memory problems are a common result of brain damage because many parts of the brain are concerned with storing and processing different kinds of information. The level of memory loss can vary. Many people experience short-term memory loss, or find it hard to concentrate following meningitis. This can make everyday tasks very difficult and can cause problems when returning to work or school.

Short-term after-effects

Children and adults may experience a wide range of less visible after-effects in the weeks and months after meningitis. These can include general tiredness, persistent headaches, clumsiness, giddiness and sore or stiff joints.

In most cases these problems do gradually improve, but they can be very debilitating and distressing for the person concerned. If you'd like more information on the after-effects of meningitis, you can call our 24-hour freephone helpline on 0808 80 10 388 and speak to one of our nurses.

What we can do for you

We specialise in the aftercare and support of people affected by meningitis. Last year we helped 20,000 people through our unique range of free services and community support. We are here for you.

We can;

Offer free, professional support to anyone affected by meningitis; however and whenever it’s needed. Whether your experience of the disease was two weeks ago, or ten years ago, we’re here to help you.
Help to ease the burden of meningitis by providing financial support grants. The grants can pay for many items including, but not limited to, specialist equipment, learning assistance, therapy, travel and accommodation costs for hospital visits and much, much more.
Give you free counselling (including art therapy for children and young adults).
Put you in touch with people who have had a similar experience through our one-to-one network.
As the leading voice on the impact of meningitis, we can help with any questions or queries on the disease. Our helpline is available 24-hours a day, 365 days of the year. It’s free and staffed by specially trained nurses, so please get in touch.
Provide free information on meningitis – leaflets, posters, our DVD, or by sending a member of our community team to do a talk or presentation.